Jakob UPDATE!!!

He's doing GREAT!!!

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for more pictures of Jakob.
Album: Jakob Quinn

Jakob Update and New pics

Jakob has been doing really well. The last update we have is earlier this week we spent the night at Childrens Mercy so they could do another EEG and monitor his episodes if he had any. The EEG came back normal. He had his episodes on the way there in the car of course, but the first day we were there nothing. During the night I didn't get any sleep trying to catch a episode if he had one so I could call the nurses in and show them. Nothing.. atleast what I seen while tryin to stay awake. I think I finally dozed off around 4 in the morning. The next day the neurologist had said if he had any during the night they would do a 24 hour EEG on him, but since we hadn't had any episodes since we had been there he opted not to do it. There was a couple times the next day he had a little one. I called the nurse in and he stopped. We both stood there staring at him, waiting... and nothing. So she left. As soon as she walked out the door he had another one so I called her back in and guess what...nothing.. Very frustrating.

Here is the positive, we actually got to talk to a neurologist and even though we came away with barely any answers he are some things that came out of that conversation.

WE ARE VERY LUCKY!!! The neurologist was so incredibly perplexed by Jakob. First of all, what he told us was after reading Jakobs reports he is amazed he is even here. In all circumstances Jakob should of been a still birth. The Neurologist was amazed that I was in to have a standard scheduled c-section and for no other reason.. basically, I was in the right place at the right time. If I hadn't been there when I was Jakob wouldn't be here today. He also was very puzzled by Jakobs "seizure" activity. If it was seizures it shouldn't be happening everytime we have a car ride. Also, it's not like he is not breathing during these episodes. Instead he is thinking perhaps this can be a under developed nervous system. He can't say for sure but what he can tell us is Jakob is very healthy and the neurologist is very optimistic that he will grow out of these "episodes" as he grows.

It was all so interesting to see the neurologist in deep thought as he try to solve the mystery behind our little guy and to see how stumped he was that we had him with us today. While driving home, Jakob was awake in the car and had no episodes till he fell asleep. Leaving there, however, has left me less paranoid and very positive of his outcome even though we still don't have all the answers.

Saturday the 16th, we took a drive to Jakobs grandma and grandpa Bartletts. It was nice to get out of the house and not be so confined. He did have little twitches on the way there, but not much. He was visited by most of his aunts and uncles while there. *sigh* I feel like we can breath again, just a little.

Making our little house work

Well once again, we are going to furniture arranging fools. Our friends will be shaking their heads and laughing at us. It's to be expected.

While we have been in our house off of Green each of us has literally been in about every bedroom we have.

Originally, when we just had Jackson and had no intentions of having more, this house was the perfect size with one bedroom downstairs and two rooms upstairs. It is considered a two bedroom house cause you have to walk through one room to get to the other. Jackson was downstairs, Brian and I upstairs with an office. It was great, but along came Josey.

So Josey had the office room. However, Brian and I felt at some point that the kids should have the upstairs rooms and we should have the downstairs room so we traded rooms with Jackson. At some point, we decided Jackson would want more privacy without having Josey walking through his room all the time so we decided that we would move to the sunroom, Jackson would have Jo's room, and Josey would move downstairs. This would leave that middle room up there for a play area, hang out type room. . Well I was getting tired of the middle room being such a mess with toys. I never made it up stairs very often and it was just too much to keep track of. So how could I fix this problem? OH I know.. Lets let the kids both be upstairs again, Brian and I will move back to the downstairs room. All the toys will go in the Sunroom and that can be a play room more or less. That done, but oh crap we are pregnant again!!!!

Up until recently we were just going to keep a pack and play in our room for baby Jakob, not knowing what the heck we were gonna do. We love living where we live. We have the best neighbors and friends, we love being a block away from the elementary school. Our mortgage payment is awesome. We just weren't ready to find something new. So what to do... ????

Okay, here we go again. *breath* Jackson is going in the sunroom, which he is ecstatic about! Should I be putting an alarm on the door incase he has the urge to sneak out.. that may happen soon. Baby Jakob will be taking Jacksons old room. We are staying put and Josey is staying put. We don't know where the toys are going just yet! Oh and I got fixed so there will be no need to make room for any other kids.