Jakob Update and New pics

Jakob has been doing really well. The last update we have is earlier this week we spent the night at Childrens Mercy so they could do another EEG and monitor his episodes if he had any. The EEG came back normal. He had his episodes on the way there in the car of course, but the first day we were there nothing. During the night I didn't get any sleep trying to catch a episode if he had one so I could call the nurses in and show them. Nothing.. atleast what I seen while tryin to stay awake. I think I finally dozed off around 4 in the morning. The next day the neurologist had said if he had any during the night they would do a 24 hour EEG on him, but since we hadn't had any episodes since we had been there he opted not to do it. There was a couple times the next day he had a little one. I called the nurse in and he stopped. We both stood there staring at him, waiting... and nothing. So she left. As soon as she walked out the door he had another one so I called her back in and guess what...nothing.. Very frustrating.

Here is the positive, we actually got to talk to a neurologist and even though we came away with barely any answers he are some things that came out of that conversation.

WE ARE VERY LUCKY!!! The neurologist was so incredibly perplexed by Jakob. First of all, what he told us was after reading Jakobs reports he is amazed he is even here. In all circumstances Jakob should of been a still birth. The Neurologist was amazed that I was in to have a standard scheduled c-section and for no other reason.. basically, I was in the right place at the right time. If I hadn't been there when I was Jakob wouldn't be here today. He also was very puzzled by Jakobs "seizure" activity. If it was seizures it shouldn't be happening everytime we have a car ride. Also, it's not like he is not breathing during these episodes. Instead he is thinking perhaps this can be a under developed nervous system. He can't say for sure but what he can tell us is Jakob is very healthy and the neurologist is very optimistic that he will grow out of these "episodes" as he grows.

It was all so interesting to see the neurologist in deep thought as he try to solve the mystery behind our little guy and to see how stumped he was that we had him with us today. While driving home, Jakob was awake in the car and had no episodes till he fell asleep. Leaving there, however, has left me less paranoid and very positive of his outcome even though we still don't have all the answers.

Saturday the 16th, we took a drive to Jakobs grandma and grandpa Bartletts. It was nice to get out of the house and not be so confined. He did have little twitches on the way there, but not much. He was visited by most of his aunts and uncles while there. *sigh* I feel like we can breath again, just a little.